On Tuesday, only one day after her swallow test, she was bottle-fed approximately 30ccs and did well (from what we could see). Upon further discussion with several of our doctors, we all agreed that it would be best to take it slow. Although she performed much better than her first swallow test, we're still not sure if she's ready for prescribed oral feedings every three hours. She did not prove herself in feeding without aspirating, which convinces us to error on the side of caution. We appreciate our doctors' conservative suggestion of "less is more". We DO NOT want to accelerate her feedings and cause any negative ramifications.
Knowing that the preservation of her lungs is a priority, most feel as though Landry would benefit from a g-tube. In addition, to mitigate her issues with reflux, they will sumultaneously perform a Nissen Fundoplication.
Benefits of a g-tube include:
- She will benefit from a full belly with each feeding
- They will do a Nissen procedure that will help reduce her reflux. This will be wonderful and could have a positive effect on her oxygen saturation levels (which would speed up the removal of the cannula).
- Lastly, this procedure will allow Landry to come home sooner. We can't wait to bring our little bug home. She will continue to work on feeding with a speech therapist and our hope is that the g-tube will not be needed for long. The goal is for Landry to get bigger, stronger and more efficient with her feeding.
As of now, the procedure is scheduled for August 9th. That's right, surgery. We are not looking forward to her having another surgery, but (thankfully) this one is less invasive and yields a much easier recovery.
Please pray with us....
- Pray for a successful surgery that goes smoothly.
- Ask for a speedy recovery and that she can get back to her feeding schedule in a timely manner.
- We hope that this procedure will help her oxygen satuturation levels and that she will come off of oxygen altogether! We know she is sick of having tape on ther face and we can't wait for her to be independent of any wires or tubes.
Thank you for all of the love and support. We continue to be amazed and humbled by all of you walking this journey with us!
Kacee & Kyle
Landry is Beautiful. Even though things may be going slower than you had hoped...we know God will bring her to her final destination strong and perfect. We continue to pray she will be home with you soon. The Francis Family.
ReplyDeleteKacee and Kyle - I just found your blog tonight but we have been wondering for a few weeks how you guys were doing. I am so amazed by the strength and faith you have shown throughout these few months. Landry is a lucky girl to have the two of you as parents. She is beautiful and looks to be thriving in your love. We will continue to watch the blog and pray for you guys. ~The Romines-Brock, Sara, Reid and Ryan (Reid was a Hacker last spring).
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